Advances in the treatment of inherited blood and clotting disorders have greatly reduced the fear of dying from something as ordinary as a cut finger among this special population. In large measure, that’s due to the comprehensive care model, which has reduced mortality in males with hemophilia by 40 percent. As provided in a center like the Penn Comprehensive Hemophilia and Thrombosis Program, that means a dedicated team of hematologist, nurse, social worker and physical therapist, physicians on duty round the clock, extensive lab services, genetic counseling, help in developing critical exercise regimens, home infusion, coordinated care with dentists, ob-gyns, surgeons and other specialties as needed, and clinical trials of new drugs. Federal funding assists those unable to pay (Presbyterian Medical Center, 103 Medical Arts Building, 39th and Market streets, 215-662-9960, pennhealth.com).
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